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Research

Fetal alcohol spectrum disorder: Development of consensus referral criteria for specialist diagnostic assessment in Australia

The use of standard methods to identify when to refer individuals who may have FASD for specialist assessment could help improve the identification of this...

Research

Exploring the potential to use data linkage for investigating the relationship between birth defects and prenatal alcohol exposure

There was a significant association between maternal alcohol-related diagnoses recorded during pregnancy and ARBD, with an attributable fraction of 0.57%.

Research

Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidence

Early assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD.

Research

A qualitative examination of the cognitive and behavioural challenges experienced by children with fetal alcohol spectrum disorder

The findings suggest consistency between caregivers in their reports of the difficulties experienced by children with Fetal Alcohol Spectrum Disorder

Research

Maternal Alcohol-Use Disorder and Child Outcomes

The effects of maternal alcohol-use disorder are experienced by the majority of exposed children rather than a vulnerable subgroup of this population

Research

The Demographic and Neurocognitive Profile of Clients Diagnosed With Fetal Alcohol Spectrum Disorder in PATCHES Paediatrics Clinics

The aim of this study was to describe the demographic and neurocognitive profile of the first 199 individuals diagnosed with FASD in PATCHES Paediatrics clinics

Research

RE-AIM evaluation of a teacher-delivered programme to improve the self-regulation of children attending Australian Aboriginal community primary schools

Benefits in teaching the Alert ProgramĀ® to students in a region with high reported rates of foetal alcohol spectrum disorder and self-regulation impairment

News & Events

Making FASD History in the Pilbara: celebrating International FASD Awareness Day

To mark International FASD Awareness Day, The Kids will launch a series of health promotion videos that feature local Aboriginal community members.

News & Events

Making FASD history in the Fitzroy Valley

The Make FASD History campaign, led by community researchers and The Kids Research Institute Australia, has made huge inroads into prevention, diagnosis and therapy.

News & Events

New project to make FASD history in the Pilbara

A new project aimed at reducing Fetal Alcohol Spectrum Disorder (FASD) in the Pilbara has been launched today in South Hedland.